In 2020-2021, we paired five ethnographers with five end-of-life, home caregivers to observe, document, and record their stories and knowledge. Conversations between caregivers and ethnographers took place during the pandemic, over Zoom and later in person. The pairs created meaningful relationships, and their conversations not only help us “see” and celebrate the work of caregivers, but also contribute to the field of folklife ethnography, making space for shared grief and prioritizing a commitment to trust and authenticity.
Full ethnographies will be published in October 2022. We’re thrilled to share interview excerpts from year-long ethnographies of end-of-life home caregivers.